Sunday, July 14, 2013

Update Bella

So she still has her stitches in at this point.  She was originally supposed to get them off Friday, then it was decided to do it on Monday (tomorrow) instead, and then on Thursday at her appt.  he mentioned he might wait a few more days.  So we will see.  She still has her PICC line in at this point. I have been doing daily dressing changes on her PICC line because she has had many allergic reactions to the bandaging and adhesives they use.(tagaderm)    I also have been applying ointment on the (6 inch) incision 4 times daily.

So we are still holding out hope that the doctor will give her the go ahead to go to California this next weekend.  We will find out tomorrow.  Here is the situation. We have been planning this trip for almost a year.  My siblings and their families and our parents are all going.  We have the housing all paid for like 6 months ago (we paid @$900 for housing  thats just mine and ricks portion...).  Its something we have had to plan very carefully.  My kids have never been to California.  Its not the kind of thing we get to do often. So it is really important.  The housing has a 45 day cancellation.  So we are out a whole lot of money at this point if we cancel.  We arent going to disneyland...  We are going to San Francisco and the redwoods.  
It keeps going back and forth.  It seems to be about 50/50 if we will be able to go or not.   (Between Bella's health and our Car problems...)   I think though at this point the make it or break it will be Bella's health.  So we will see how tomorrow goes. Keeping my fingers crossed.

I also wanted to take a minute and mention how proud I am of my daughter.  She has been so strong through this whole thing.  She complains minimal.   She has been in bed for weeks!  She really is only supposed to get up to eat or use the restroom.  Drs orders.  And she is in pain constantly.  She rarely depends on her pain meds.  (and she has the good stuff)  She misses her friends...  She misses being a teenager, she misses just being able to sit,   she misses being able to just think about boys :-)  she has missed her entire summer,  Missed girls camp... family backpacking trip....  sleepovers with friends,  missed EFY,  hasnt been to church in over 3 months...  BUT she hasnt complained about any of that stuff really.   Bella you will get through this and you will be even stronger because of it.
Love Mom

3 comments:

Sieler-Lindsay Family said...

Sandy, oh my gosh! How I am praying for Bella and your family to be able to go to California. I am just sick that your sweet girl and your whole family has suffered so much. Thank you for your posts! How can we help?

Sieler-Lindsay Family said...

Sandy, oh my gosh! How I am praying for Bella and your family to be able to go to California. I am just sick that your sweet girl and your whole family has suffered so much. Thank you for your posts! How can we help?

The Perry Family said...

Thinking of you all the time Sandy! I sure miss you..... sorry that you are feeling down. Hopefully you got some good news this week to brighten up your day! One day you will be able to look back on this whole experience and see where Heavenly Father was holding your hand and see where you and your family were able to grow. What can we do??? Love you