Monday, June 17, 2013

Bella's journey continues

Well Friday we had an appt. for her wound vac change and the surgeon was there, He did a "debridement"  Which is where they scrap out and clean out all the "bad" skin and cells and scar tissue, to make room for the new cells etc.  So anyways it was bad news.  she went from being "2 cm" to being 6 cm.  Because the
2 cm wasn't really 2 cm it was just the bad/ dead skin cells etc. that rests at the bottom of the wound if you don't get it cleaned out.  The Dr. also said that if doesn't start showing improvement in the next week or so then he will need to go back in to the O.R. and do another debridement next week.  Not the best news.  But not the worst either.  Trying to remain positive.  She also had a "pic line" put in.  Because of all the sedation's and IV's she is having they are starting to have a hard time with getting Iv's going on her,  last Friday they took 1 to 1 and 1/2 hours trying to get an IV.  They tried and tried and finally pulled a sonar/ ultra sound machine in to try to help them find a usable vein.    This weekend she started having a reaction to her IV.  They mentioned things like blood clot, infection, mechanical phlebitis.  But luckily it started looking better so far.  And no more fevers the last 2 days.  WOOHOO!  Its funny how those small things become great.   (funny might be the wrong word)
I wish I had eloquent words to express my feelings. And maybe at a later date I will try to express them. I feel like I am kinda in survival mode right now.   I have a lot of feelings on everything that has been going on.  Friday was a pretty hard day for us.  It felt like a big setback, and in someways it was a big setback.  But I can tell you this much that spending so much time in the PICU (pediatric intensive care unit)  my daughters "big setback" is minor to some of the everyday things that some of those other children and parents have to go through.  When I walk by and see a sweet beautiful girl about 12 years old on a ventilator in one room with cords galore, seeing babies (some just weeks old) with dozens of cords and wrapped up like a mummy,   Hearing the sad scream and cries of the little boy (Cams age) next door, not knowing if it is from pain or if he just wants his Mom and Dad.  I will take the "big setback" any day.  And I realize I will have my ups and downs like that everyday, several times a day.  But I am so glad she has such great doctors and nurses that care about her.  And family and even friends most of all!  We were all touched that our Bishop suggested we do a ward fast in July for Bella.  Bella and Rick and I were all very touched by this suggestion.  We are so thankful to our family and friends.  And so blessed.
I will close on a high note.  Yesterday while we were at the Hospital Bella's aunt (who happens to be a nurse at ST. Lukes) did her dressing change on her pic line and she unbeknownst to Bella "tattooed" her bandage on her arm. So here are some pics of her "tat"


For those that cant read it,  It says I (heart) Justin Bieber
And for the record Bella DOES NOT like Justin Bieber.  
Her aunt just wanted her to tease her and get the satisfaction of Bella needing to explain to everyone who sees her arm how she feels about Justin Bieber.  :-)  

7 comments:

Sandy N said...

Today (monday) her depth was 6.1 so no healing took place this past 3 days. But we are hoping for some healing by her next appointemt on Thursday.

mandy said...

Will keep her in my prayers!

Blue said...

Charley and I are praying for Bella and the family....Hope things begin to get better!

Andrea and Kasey said...

So sorry Sandy! Poor Bella, praying she heals quickly. Love and prayers- the Jarvis family.

Andrea and Kasey said...

So sorry Sandy! Poor Bella, praying she heals quickly. Love and prayers- the Jarvis family.

The Perry Family said...

So sorry you are struggling right now. We are thinking of Bella and the rest of the family. Don't hesitate to call if there is anything you need. Luvs...

Jen said...

Sandy, you don't need fancy words to tell what you are feeling. You are a mom with a child who is suffering, enough said.
I love your upbeat attitude about all of this and will remember you in my prayers. Is the fast on the regular fast day? Let me know if it is different.
Miss your sweet family.